So I was just sitting with Tess in my lap sharing a joke with Rose, and Tess threw her head back, opened her mouth wide and gave a very hearty chuckle. Oh my gosh, my heart simultaneously melted and broke apart at the same time. Such a gorgeous girl.
And phew, it’s Sunday. That means we’ve started another week. Last week was so tough. On Friday we eventually had the blood tests that will (hopefully) help the doctors work out why she has a cataract. We had to have the tests in the hospital. At first I wondered why, surely they were just blood tests. But then when I saw what they had to do to get blood from her. Because babies are so little and chubby their veins don’t stick out so the technician has to really know what they’re doing. It was pretty hard to watch. Actually, I didn’t do much watching – Chris did an amazing job at holding her and keeping us strong, despite being much more squeemish than me at the sight of blood. Poor Tess got pretty upset, and it was hard to hear her so distressed.
After that we had to go and have a renal ultrasound and MCU, which is completely unrelated to her eye problem, it’s because she had that urinary tract infection a few weeks back. Bad news. She has a kidney reflux problem, where her pee travels the wrong way up the tubes to her kidneys. She has a pretty bad case, so she’ll probably have to be on a permanently low dose of antibiotics, or possibly surgery. If I’m sounding a bit blazé, believe me I’m not. It’s just that as bad as all that sounds it’s nothing in comparision to the worries about her sight. Renal reflux is apparently pretty common. But our poor girl, she’s having such a tough time right now.